To the editor: I, too, have lymphedema, but not practically as debilitating as Kathy Bates described in her current op-ed (“When surviving most cancers isn’t the tip of the combat,” Oct. 23).
About 10 years in the past, I had a sore on the underside of my left foot that was melanoma. It was eliminated together with 4 lymph nodes, the perpetrator of my growing lymphedema. I had by no means recognized about lymphedema or been instructed by my oncologist that this might outcome from the surgical procedure. It was the plastic surgeon that I adopted up with after the surgical procedure who instructed me the swelling in my foot was lymphedema and could be a lifelong situation.
I’m fortunate that my melanoma was caught early and handled shortly. I labored with a bodily therapist who specialised in lymphedema, however that actually didn’t assist. I’m lucky to have good medical insurance that covers many of the practically $300 worth for one custom-made compression knee-high sock (I’ve a number of) made in Germany that I need to put on day by day. No strolling barefoot on the seaside for greater than an hour for me, because the ache is an excessive amount of with out carrying my compression sock.
Luckily, the 2024 Lymphedema Remedy Act established a brand new profit class beneath Medicare Half B to partially cowl lymphedema compression clothes and different provides. That is fantastic, however nonetheless the prices add up and don’t go away — and neither does the ache.
Julie Friedman, Malibu
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To the editor: Many due to the nice Kathy Bates for her phrases on lymphedema.
Extra key issues to know, for folk like me who developed the situation with out most cancers: See a vascular surgeon; get a referral to a lymphedema clinic, like USC Keck’s terrific one; and search out an skilled in short-stretch bandaging. This basically medieval approach is the very best there’s up to now, and can assist hold you from growing sepsis, which might kill you. Additionally, it might cease the ache: unimaginable aid!
Above all, take it significantly — it’s critical.
Amy Richlin, Hancock Park
